My dearest friends. I know many of you have wondered hoe Lia was doing, but I really didn’t have an update to send. Through one of my best friends, the genius paediatric neurologist, Dr Lamb (with a waiting list of 500 people), heard about Lia’s Lissencephaly tipe 1 (malformation of the brain) and we got…
Many of you know that Lia has not been well, but we wanted 100% confirmation of her diagnosis before we informed anyone. We got the shocking confirmation yesterday at a 3rd doctor in Morningside. The fool thar I am, I believed they had made a misdiagnosis and our world will return to normal. This is…
Lia saw Dr Lamb yesterday and he took a step back and couldn’t believe what he was seeing. He said “she’s a different child”. She laughed at him, smiled at him, looked at him and kept on kicking and pulling herself up on my lap. He said that HIPPS only clears up in less than…