15 May 2024

Trying to get somewhere with Discovery Medical Aid.

This is my little girl Lia. She was diagnosed with lissencephaly pachygyria in 2022. It means her brain didn’t fully develop. She is almost 3 and can not walk, sit or talk.

It is a very rare disease. Yes Discovery Limited there are not ICD10 codes for her condition. Discovery has rejected all my applications to support Lia in trying to develop her brain and have a normal life.

They have declined occupational therapy, a crucial part of her development. They have declined any code that can help her get equipment to help her sit, stand or walk.

She needs new splints to stand in her standing frame, declined. The doctors, therapist and I have filled in every form you’ve thrown at is. Declined.

It is a RARE disease, it won’t be on your lists.

Does this mean at almost R12 000 month, you won’t help me give my child a better life? I am a desperate and devastated mother.

What can I do now? Who can help me? How many more motivations do you need for this disease? Please help me. Please. This can’t be how her story ends. hashtagraredisease hashtagdiscoverymedicalaid hashtagtwinmom hashtagsinglemom

Please, we need PMB to give her a shot at a good life.

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Is there anyone that can help me?
Kelly du Plessis Brent Lindeque Discovery Limited Brett Tromp CA(SA) Gerinda Engelbrecht (MBA) Linky Olivier CA(SA) Mandy Rodrigues Anyone? North-West University / Noordwes-Universiteit Pauli Van Wyk Mandy Wiener Joy Malete CA(SA)