6 March 2023

Today Lia visited the orthotist Kirsten Gibson for measurements and fittings for a standing frame and splints to protect her tiny feet. The standing frame will give her core muscles time to get stronger as this is the biggest issue at the moment and its keeping her from learning to sit. Kirsten made moulds of…

22 February 2023

After waiting three weeks for Lia’s new neuro physio appointment, I had so much anxiety. Both Lia and I fell in love with Sarah, her occupational therapist and me being the introvert that I am, it’s hard to let someone knew in. I knew from the start that I would have to choose between Sarah…

8 February 2023

Lia saw Dr Lamb yesterday and he took a step back and couldn’t believe what he was seeing. He said “she’s a different child”. She laughed at him, smiled at him, looked at him and kept on kicking and pulling herself up on my lap. He said that HIPPS only clears up in less than…