19 November 2022

We got to see Dr Lamb today. I’ve been so worried about Lia, worried that the HIPPS had returned. She’s been crying for hours every single night for the past two weeks. I sent a message to Dr Lamb and he arranged for us to come through, but first we needed to do another EEG.…

14 November 2022

It’s been almost 3 months since we first met Dr Lamb the paediatric neurologist. Thus 3 months on her current cocktail of medications. There has been such an improvement in her “awakeness” – its like she woke up for the first time in 6 months. She hasn’t had an epileptic fit since the 25th of…