Hello. This past week feels like something I lived through in fast forward, while also somehow standing completely still inside it. It started with a decision I wasn’t ready to make. Prof L van Niekerk, recommended by Prof Lamb, decided that Lia needed her Mic-Key tube placed in theatre the next morning (19 March 2026).…
There are moments in life when time seems to stretch and fold in strange ways. The past few weeks have been like that for us. Days that felt impossibly long, nights with almost no sleep, and moments where fear and hope lived side by side. It started slowly. Lia had been irritable for about two…
2025 has not been kind.So much is happening and yet it feels like nothing is happening at the same time.The return of Lia’s seizures due to HIPPS has been the final blow on a terrible cake. She had her second EEG on Wednesday and the results confirmed that she is still in HIPPS. Dr Lamb…