I Wasn’t Ready… But She Needed Me To Be

Hello. This past week feels like something I lived through in fast forward, while also somehow standing completely still inside it. It started with a decision I wasn’t ready to make. Prof L van Niekerk, recommended by Prof Lamb, decided that Lia needed her Mic-Key tube placed in theatre the next morning (19 March 2026).…

Seizures for Christmas

2025 has not been kind.So much is happening and yet it feels like nothing is happening at the same time.The return of Lia’s seizures due to HIPPS has been the final blow on a terrible cake. She had her second EEG on Wednesday and the results confirmed that she is still in HIPPS. Dr Lamb…