Today feels like the right day to sit down and look back on the past few months. I think when you’re living in survival mode, you don’t always realise how much has actually happened until you stop and breathe for a second. And honestly… what a season it has been. April feels both five minutes…
Hello. This past week feels like something I lived through in fast forward, while also somehow standing completely still inside it. It started with a decision I wasn’t ready to make. Prof L van Niekerk, recommended by Prof Lamb, decided that Lia needed her Mic-Key tube placed in theatre the next morning (19 March 2026).…
2025 has not been kind.So much is happening and yet it feels like nothing is happening at the same time.The return of Lia’s seizures due to HIPPS has been the final blow on a terrible cake. She had her second EEG on Wednesday and the results confirmed that she is still in HIPPS. Dr Lamb…