2025 has not been kind.So much is happening and yet it feels like nothing is happening at the same time.The return of Lia’s seizures due to HIPPS has been the final blow on a terrible cake. She had her second EEG on Wednesday and the results confirmed that she is still in HIPPS. Dr Lamb…
She had her fourth seizure on Sunday, and it was a very frightening one. For about a month I have noticed small changes in her behaviour, but it has been challenging to speak to Prof Lamb. He is double booked and fully booked until the end of time. Late Monday he came back to me.…
I’ve been battling with whether I should write about the past month or not, but some of you have heard through my dad that Lia has had a rough couple of weeks. On the morning of 5 August, just after 9, Lia had an epileptic seizure. I was in the bath at the time, but…